Social Life, Family Dynamics, and the Burden of Stigma

Part 3 (35:02)

Description:
This section explores the social aspects of living with sickle cell disease, including family dynamics, friendships, secrecy, stigma, and cultural attitudes. Panelists share stories of family support, misunderstandings, and the challenges of disclosure.

Learning Objectives:

  • Describe how family dynamics can shape a person’s coping strategies with chronic illness.
  • Explain the cultural and social reasons sickle cell may be kept secret.
  • Discuss the role of stigma, teasing, and bullying in shaping identity and self-esteem.
  • Evaluate how family and friends can either support or hinder wellness.