Is Gene Therapy Right For Me?

Category:Health & Wellness → Gene Therapy

Participants:

  • Moderators: Dr. Carolyn Rowley, Executive Director & Founder, Cayenne Wellness Center

Guest Speaker:

  • Dr. Michelle Wang – Medical Specialist in Gene Therapy and Hematology

Course Description:

This powerful and educational session explores the evolving world of gene therapy for sickle cell disease, offering a deep dive into its FDA-approved treatments, eligibility criteria, patient experiences, and psychosocial impacts. Led by Dr. Michelle Wang and patient advocates, the discussion provides an honest and compassionate look at the complex journey from diagnosis to post-treatment recovery.
Participants will learn about the medical science behind gene therapy, the importance of patient and caregiver education, and the emotional realities that accompany this groundbreaking treatment. The conversation emphasizes the need for mental health support, community connection, and safe spaces for those navigating the challenges of chronic illness and transformative care.
Through personal stories of courage, advocacy, and healing, this course empowers patients, caregivers, and healthcare professionals to approach gene therapy with knowledge, empathy, and purpose, honoring the past while paving the way for future generations.

Learning Objectives:

By the end of this course, participants will be able to:

  1. Describe the mechanisms and process of gene therapy for sickle cell disease.
  2. Identify the eligibility criteria and health requirements for patients considering gene therapy.
  3. Recognize the potential short-term and long-term side effects of treatment.
  4. Explain the importance of fertility preservation and informed consent before treatment.
  5. Understand the psychosocial and emotional impact of gene therapy on patients and caregivers.
  6. Discuss the role of caregivers and the importance of mental health support during and after treatment.
  7. Evaluate the significance of community advocacy and awareness in expanding access to care.
  8. Identify resources and patient support programs that assist in navigating gene therapy.
  9. Reflect on the personal journeys and resilience of gene therapy recipients.
  10. Articulate the ongoing need for education and equity in sickle cell healthcare and research.

Course Content