Pregnancy and Sickle Cell

Participants:

  • Presenter
    • Dr. Carolyn Rowley – Executive Director & Founder, Cayenne Wellness Center
  • Moderator
    • Dr. Keith Quirolo – Pediatrician & Chief Medical Officer, Cayenne Wellness Center 
  • Speakers
    • Dr. Kim Smith-Whitley- Pediatric Hematologist & Site Lead, Pfizer (formerly Executive VP & Head of R&D at GBT; former Clinical Director of Hematology & Director of the Comprehensive Sickle Cell Center at CHOP)

Course Description:

This essential course explores the intersection of pregnancy and sickle cell disease, offering medical insights, patient perspectives, and practical guidance for women, caregivers, and healthcare professionals. Featuring expert commentary from Dr. Kim Smith-Whitley, the discussion highlights the importance of education, preparation, and a coordinated healthcare team in achieving positive pregnancy outcomes.

Participants will gain an understanding of potential complications such as preeclampsia, transfusion reactions, and postpartum risks, while also learning strategies for self-advocacy, reproductive planning, and emotional wellness. The course emphasizes that—with the right support and monitoring—women with sickle cell disease can experience healthy pregnancies. Learners will also explore how advocacy, ongoing research, and open conversations about reproductive health contribute to safer, more informed care across all stages of motherhood.

Learning Objectives:

By the end of this course, participants will be able to:

  1. Explain how sickle cell disease affects pregnancy and maternal health.
  2. Identify common complications, including preeclampsia and transfusion-related risks.
  3. Recognize the importance of self-advocacy and communication with healthcare providers.
  4. Describe the role of a multidisciplinary healthcare team in supporting maternal and fetal health.
  5. Understand the significance of discontinuing hydroxyurea prior to conception.
  6. Discuss safe and effective transfusion strategies during pregnancy.
  7. Recognize the importance of postpartum monitoring and long-term follow-up care.
  8. Highlight the need for research and advocacy for safe, disease-modifying therapies.
  9. Promote community and emotional support for mothers managing chronic illness.

Identify resources that empower women to make informed reproductive health decisions.

Course Content