Stigma & SCD- Humanizing the Patient Experience (Part 2)

Part 2- 29:42

Summary

Part Two of the conversation highlights the challenges faced by advocates for patients with sickle cell disease, emphasizing the lack of respect and recognition from healthcare professionals. It discusses the importance of escalating issues when care is inadequate and the fear that patients and their families experience when seeking medical help. The speakers call for a collective effort among healthcare professionals to improve the treatment and advocacy for sickle cell patients, culminating in a reflection on the recent Sickle Cell Disease Summit and the progress made in raising awareness and addressing these issues.